The Chelsea Hutchison Foundation (CHF) is a Colorado non-profit corporation formed by Julie and Doug Hutchison to provide help and support to individuals, particularly children and young adults, who have epilepsy. When you support CHF, you make a big difference in the lives of those who struggle with seizures and epilepsy. We are a very grass roots, volunteer-based Foundation that is committed to getting relief right into the hands of those who need it. We aren't big, but we are mighty and determined.
Founded by Chicagoans Mike and Mariann Stanton in January 2010 after the death of their four-year-old son Danny, the Danny Did Foundation works toward its mission to prevent deaths caused by seizures with these main goals in mind: advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing the SUDEP communication model between medical professionals and families afflicted by seizures, and the mainstreaming of seizure detection and prediction devices that may assist in preventing seizure-related deaths. We view these devices as complimentary to medicinal, surgical and dietary measures that are used to treat seizures.
The Epilepsy Foundation provides a range of education, programs and services for people with epilepsy, families, friends and those who care for and about epilepsy. Many programs and services are available and implemented through our network of affiliates and often tailored to the communities they serve. Some services are nationwide, such as wide ranging advocacy efforts, legal and government affairs, research, public awareness and outreach, and training programs for selected health care professionals and community caregivers. For more information, contact the National Office at 800-EFA-1000 or your local Epilepsy Foundation affiliate.
The Epilepsy Foundation of Colorado leads the fight to stop seizures, find a cure and overcome the challenges created by epilepsy. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure.
Monitoring devices are made available by the Epilepsy Foundation of Western Central Pennsylvania through a grant by the Emma Bursick Memorial Fund.
The Epilepsy Foundation Western/Central Pennsylvania (EFWCP) is a private, non-profit service organization providing public education and supportive services to individuals and families affected by epilepsy/seizure disorders. With offices and staff in Pittsburg, Camp Hill and Johnstown, the EFWCP now offers its nationally recognized programs and services to residents in 49 counties throughout western and central Pennsylvania. Our mission is to lead the fight to stop seizures, find a cure and overcome challenges created by epilepsy.
The Emma Bursick Memorial Fund (EBMF) of the Pittsburgh Foundation was established in 2009 in memory of Emma Bursick who died from SUDEP at the age of seven. EBMF's mission includes: funding for emergency medication programs and epilepsy research; community outreach via presentations & seminars; training for Medical Examiners, health care providers, and professional organizations; and grants that promote patient and family self advocacy for improved epilepsy treatment, healthy living, and hopefully, a cure.
JoshProvides is an Epilepsy Program established to educate, increase and promote awareness, advocate, support, volunteer, and fundraise regarding epilepsy; strive to eliminate the negative stigma that is associated with epilepsy; and provide financial and benevolent assistance for people living with epilepsy and seizure disorders and their families and to the community at large.
The LGS Foundation is a nonprofit organization dedicated to improving the lives of individuals living with Lennox-Gastaut Syndrome through research, programs, and education.
Southern Oregon Epilepsy Group is a nonprofit organization dedicated to raising epilepsy and S.U.D.E.P awareness through education and support. SOEG provides public education, support to families and loved ones as well as provides services and grants to those in need. Epilepsy is a journey, some journeys should not be traveled alone.