The Chelsea Hutchison Foundation (CHF) is a Colorado non-profit corporation formed by Julie and Doug Hutchison to provide help and support to individuals, particularly children and young adults, who have epilepsy. When you support CHF, you make a big difference in the lives of those who struggle with seizures and epilepsy. We are a very grass roots, volunteer-based Foundation that is committed to getting relief right into the hands of those who need it. We aren't big, but we are mighty and determined.
Founded by Chicagoans Mike and Mariann Stanton in January 2010 after the death of their four-year-old son Danny, the Danny Did Foundation works toward its mission to prevent deaths caused by seizures with these main goals in mind: advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing the SUDEP communication model between medical professionals and families afflicted by seizures, and the mainstreaming of seizure detection and prediction devices that may assist in preventing seizure-related deaths. We view these devices as complimentary to medicinal, surgical and dietary measures that are used to treat seizures.
The Epilepsy Foundation provides a range of education, programs and services for people with epilepsy, families, friends and those who care for and about epilepsy. Many programs and services are available and implemented through our network of affiliates and often tailored to the communities they serve. Some services are nationwide, such as wide ranging advocacy efforts, legal and government affairs, research, public awareness and outreach, and training programs for selected health care professionals and community caregivers. For more information, contact the National Office at 800-EFA-1000 or your local Epilepsy Foundation affiliate.
The Epilepsy Foundation of Colorado leads the fight to stop seizures, find a cure and overcome the challenges created by epilepsy. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure.
Monitoring devices are made available by the Epilepsy Association of Western and Central PA through a grant by the Emma Bursick Memorial Fund.
The Epilepsy Association of Western and Central PA (EAWCP) is a private, non-profit service organization providing public education and supportive services to individuals and families affected by epilepsy/seizure disorders. With offices and staff in Pittsburgh, Camp Hill and Johnstown, the EAWCP now offers its nationally recognized programs and services to residents in 49 counties throughout western and central Pennsylvania. Our mission is to lead the fight to stop seizures, find a cure and overcome challenges created by epilepsy.
The Emma Bursick Memorial Fund (EBMF) of the Pittsburgh Foundation was established in 2009 in memory of Emma Bursick who died from SUDEP at the age of seven. EBMF's mission includes: funding for emergency medication programs and epilepsy research; community outreach via presentations & seminars; training for Medical Examiners, health care providers, and professional organizations; and grants that promote patient and family self advocacy for improved epilepsy treatment, healthy living, and hopefully, a cure.
Jaymie-Lee Ross Foundation provides support for people in south Australia in their battle with Epilepsy and to help prevent SUDEP.
JoshProvides is an Epilepsy Program established to educate, increase and promote awareness, advocate, support, volunteer, and fundraise regarding epilepsy; strive to eliminate the negative stigma that is associated with epilepsy; and provide financial and benevolent assistance for people living with epilepsy and seizure disorders and their families and to the community at large.
The LGS Foundation is a nonprofit organization dedicated to improving the lives of individuals living with Lennox-Gastaut Syndrome through research, programs, and education.
Southern Oregon Epilepsy Group is a nonprofit organization dedicated to raising epilepsy and S.U.D.E.P awareness through education and support. SOEG provides public education, support to families and loved ones as well as provides services and grants to those in need. Epilepsy is a journey, some journeys should not be traveled alone.
EAL was founded in 1977 with the goal to be a “hands-on” organization for people living with epilepsy in Louisiana. Epilepsy Alliance Louisiana is dedicated to supporting those impacted by epilepsy in local communities by confronting the spectrum of challenges created by seizures. We provide a wide range of services in and around Louisiana. EAL is focused on education and Seizure Recognition and First Aid Training – customized for any audience. EAL trains more than 4,000 people a year. EAL has monthly Epilepsy Q&A sessions for children and adults living with epilepsy and their caregivers in New Orleans, Covington, Baton Rouge, and Shreveport. EAL also has quarterly, the children support groups include activities. Additionally, EAL has Case Management – an intensive information and referral system for the challenges that face people with epilepsy, such as; disability, lack of insurance coverage, discrimination, medication affordability, and access to care.
Briezy's Bunch is an Indiana-based nonprofit corporation formed by April and Justin Krowel to provide financial assistance to children and adults with epilepsy to access critical care needs when insurance companies deny coverage. We are an all volunteer-based non-profit that is comprised of individuals who believe wholeheartedly in our mission and in making an impact in the lives of those affected by epilepsy.