A small sample of the hundreds of thank-you letters we've received over the years
A small sample of the hundreds of thank-you letters we've received over the years
The E in SHINE stands for epilepsy...we tried several different monitoring devices... none of them worked as advertised. Either alarms were going off when he wasn’t seizing or these devices were missing seizures.
The SAMi is by far the best seizure monitoring device we have used as a family. Not only do we feel confident that we are alerted to every seizure, but we also have excellent-quality videos to send to our son’s neurologist. The video recordings from SAMi have been used to diagnose new seizure types and make treatment changes without having to do an inpatient EEG.
Most importantly, we are confident that the SAMi system has saved our son’s life multiple times. We are thankful for this consistent, reliable alerting system that allows us to sleep peacefully knowing our son is safe. Thank you, SAMi, for an excellent product that gives epilepsy parents peace of mind.
- Laura Palmer, President, SHINE Syndrome Foundation
"We have been amazed at the SAMi's ability to catch the nocturnal non-convulsive seizures that other monitors would miss! The SAMi monitors for our two sons with refractory Epilepsy has changed our lives."
"This is an amazingly useful and effective product! Even our Neurologists were impressed with the quality when we brought videos in, and they wrote down the name to share with other families."
"As a caregiver, this device will help me ensure my son is safe when I am unable to sleep beside him during work hours. The threat of SUDEP is very real for everyone affected by epilepsy.
"It has been a sanity saver for me...The work you've done by creating a great device is a blessing - your service minded follow up makes it even better. We will continue to be fans of SAMi :)"
"The work and thought that went into this system and its app is incredible."
...while we had quite a few false alarms from general sleep movements, we're quickly finding settings that work.
This is such a wonderful thing to have, and I'm amazed I didn't learn about it sooner!
"We have been amazed at the SAMi's ability to catch the nocturnal nonconvulsive seizures that other monitors would miss!
With tears of gratitude, SAMi caught Ella's seizure last night during her sleep. WORDS CANNOT EXPRESS OUR GRATITUDE. SHE DOESN'T COME OUT OF THEM ON HER OWN WITHOUT RESCUE MEDS.
Just to comment: I have a few IP cameras that I use for monitoring my child. Whatever you guys do to make this one work so flawlessly is genius. I appreciate the ease.
It's working!!! Amazing! I've never had such a quick response and the problem solved so soon with any other company. Thank you so much!
You made my night. I feel Hopeful ❤️😭
I love the fact that not only can you adjust the sensitivity, but you can also adjust how long before it alerts you. I would recommend this monitor to anyone with a loved one who suffers with seizures
Now that we have it, I can not believe we had gone so long without something like this. It has absolutely been life-changing for us.
"We have documented 2-3 seizures a night and after his neurologist looked at them, he has a better diagnosis as to type and is adding a new med. we are so grateful."
- Carroll R (October 22nd, 2022)
"My son has had two seizures in the last 24 hours. Without this camera we wouldn't have known they were going on. The recordings have helped our son get proper medical attention through use of the video capture whilst also allowing us to concentrate on him during a seizure rather than trying to film it."
- Kirsty in the UK (May 12th, 2022)
"Our EMFIT sounds off every time from our daughter scratching continuously from her eczema. It sounds off multiple times a night to the point we had to turn it off & turn her sound monitor up very high...Many blessings and thank you for creating a literal life saver for my daughter. The first time SAMi alarmed me at 4am to a seizure and she had went face first into her pillow was worth every single penny spent on it."
- Tracy in Kentucky (August 26th, 2022)
"I have a few IP cameras that I use for monitoring my child. Whatever you guys do to make this one work so flawlessly is genius. I appreciate the ease. Truly a well engineered product."
- Misty in British Columbia (June 22, 2022)
"If you know anyone with epilepsy, please share with them the information about the Danny Did Foundation and the SAMi Sleep Activity Monitor. By the way, since I was in the room with Ryan, I did not have the app open on my phone, but the camera captured the seizure in its entirety. What an amazing piece of information for the doctors to take a look at to help figure out what is happening with Ryan! I am forever grateful to the Danny Did Foundation and the folks at SAMi."
- Stephanie in TX (June 20, 2022)
"As a caregiver, this device will help me ensure my son is safe when I am unable to sleep beside him during work hours. The threat of SUDEP is very real for everyone affected by epilepsy. This device will bring him an added sense of comfort and ease while he rests – which results in a better night’s sleep which is vital for his health. Thank You for the work that you do in educating and supporting families like ours."
- Ashtin in TX (March 1, 2022)
"This device has given us so much more peace of mind during the night time hours. Our daughter's seizures are almost exclusively nocturnal, which makes her at higher risk for SUDEP. Since we received the monitor from Danny Did, we are all able to sleep better at night and feel like our daughter is safer in her own bed. I was previously using a blurry baby monitor and waking constantly in the night any time I would hear any time of noise on the monitor. The Sami video quality is so much more clear, takes recordings of events, and does not have to have sound on all the time unless you want it to. The process was great and I am so very grateful. What a beautiful tribute to Danny. I did not know him but I think of him and his family often. We are so thankful for your help."
- Murray Family in Hyannis, MA (December 10, 2021)
"Firstly, what an amazing support team you have! I dreaded to make contact after all these years with something that might be so simple but am so glad that I did!! Your response was immediate and help thereafter was excellent. I have continuously recommended the camera within all of the groups I’m involved with (epilepsy ireland, parents of children with epilepsy ireland etc) and will definitely be relaying your support over the past few days. Very much appreciated...Very happy mammy!!!"
- Paula W. in Ireland (August 8, 2021)
With tears of gratitude, Sami caught Ella's seizure last night during her sleep. WORDS CANNOT EXPRESS OUR GRATITUDE. SHE DOESN'T COME OUT OF THEM ON HER OWN WITHOUT RESCUE MEDS.
- Brooke in Dorado, Puerto Rico (September 2nd, 2021)
"We just received our SAMi this morning. I figured that I was in for the better part of the morning setting it up, from personal experience in all things computer and wifi...but I was amazed at how simple it was to set up. What I figured would consume my morning took all of a few minutes, start to finish. I thought, from what I've seen on your web site, that this would be a pretty cool system, and would be much better than the video baby monitor with the tiny screen that we have been using for years to keep an eye on our princess at night. I had no idea how absolutely amazing it would be. The work and thought that went into this system and its app are incredible. Keep up the good work, and thanks for helping us gain some peace of mind at night...something we haven't had in a very long time."
- Steve in Illinois (Sept 9th, 2021)
"I'd like to say thank you! We have been big fans of our SAMi, talked it up to friends, doctors, etc. It has been a sanity saver for me especially since I am usually the one in night duty when most seizures happen. The SAMi has allowed me to monitor my son's seizures from my bed, going down to his room when he's in distress instead of sleeping in his room... The work you've done by creating a great device is a blessing- your service minded follow up makes it even better. We will continue to be fans of SAMi :) "
- Krista in Wisconsin (April 6th, 2021)
"We just completed our first night with the SAMi and while we had quite a few false alarms from general sleep movements, we're quickly finding settings that work. This is such a wonderful thing to have, and I'm amazed I didn't learn about it sooner! We've been using the EMFIT and a Motorola video monitor for the past three years with our 6 year old daughter, but I can already see that this is a much more effective solution. Thank you for creating it, this community needs so much more of this type of thing."
- Eric in California (February 19th, 2021)
"Thank you so much! You and your company have been very easy to work with and your camera system is giving us comfort during the night. Please pass along our compliments. Thanks again."
- Kim in Florida (August 8th, 2022)
Thank you, Cynthia, for your diligent support on all these issues as there is much I definitely don't know about this technology! Our daughter is on enteral nutrition and for this reason and others we already have a backup power source for our home, so this is covered. I hadn't tuned into the fact about the SAMi router not using the internet, but again this seems like just another plus. Should we have questions when implementing our system, we will ask. You provide wonderful assurance to families venturing into this new support for their loved ones.
- Kris in Wisconsin (June 30th, 2022)
I cannot thank you guys enough for the peace of mind my daughter has now, along with the ability to finally get some rest. Our 19 month old granddaughter, Cecilia, was diagnosed with Dravet Syndrome last October and it has not been an easy road. She is my whole world and we would do anything to keep her safe and with us for as long as God continues to bless us with her in our life. Thank you again!
- Bill in Lima, OH (December 18th, 2019)
In March of this year we ordered the SAMi and have found it to be one of the best investments we could of ever made in our child's health. Our son has been diagnosed with Dravet Syndrome and has life threatening seizures while he sleeps. We can finally rest at night knowing that our child is being properly monitored, almost like he is in the PICU again.
- Kyle in Ohio
We are so grateful for the Sami system/ grant...Not only are we just so much more at ease with having the Sami monitoring her but we were able to catch a rare epileptic form because of it. We sent some recordings to our neurologist and they finally found a diagnosis of something that we didn’t know she had. So now we are treating it. Without the Sami, we wouldn’t have known this was what was going on. Thank you again.
- Meg Eldridge in Michigan (July 22nd, 2022)
We are so thankful for the SAMi Sleep Activity Monitor, gives us peace of mind, better night sleep, and something else to help us prevent SUDEP. Thank you!
- Carole & her daughter Elise (pictured) December 8th, 2022
...during that time, our device grant program has helped over 700 epilepsy patients and caregivers to secure SAMi Kits. We believe intervention during a seizure event may reduce the risk of SUDEP, reduce injuries, and allows caregivers to provide seizure first aid. We've had the pleasure of getting to know the Andersons over the years, and we're excited to continue working with them to bring potentially life-saving devices like this to the families who need them most. Their dedication to the epilepsy community has made an impact on many families who cope with seizures, and we are grateful for that.
- Tom Stanton (President) and Mary Duffy (Executive Director), Danny Did Foundation
Thank you for inventing this product! It's a product that can be used for more than just seizures! It's a remarkable monitoring product! We have been able to see his sleeping patterns since we got the SAMi. We have an appointment with a sleep clinic in November and we will surely be taking the videos with us
- Donny in Canada (October 24, 2014)
I bought the Sami for my Daughter living in a Group Home in June 2022... love the SAMI, we placed it on the ceiling because her seizures begin in face, head turning and not much motion. I take the IPAD home on weekends and have found 19 seizures since June. Group Home still doesn't see any. I didn't realize you could see staff and hear thru the microphone what's said. Wish I had this 25yrs ago. Took it to my daughters Neurologist at Johns Hopkins Epilepsy Center yesterday. He was very interested about how much I really like it. He said he will see if there are others who might be interested... I told him if he has any parents who might be interested, if they want I would be happy to tell them my great experience... I've been waiting until we saw Neurologist before getting back with you genius people. I really want to thank you for your work. We really need to get this info out to these Residential group homes. DDA needs to hear about this, and medicare/state medicaid waivers that gives dda the money for individuals.
- Joan in Maryland (October 11, 2022)
"Today we had an appointment with T's neurologist at ... here in Jacksonville. I went armed with my IPOD. I had videos of the last two days. This is the same doctor 3 months ago who said you do not need a baby monitor. Go home treat him like a normal child.
He was extremely impressed. He loved it he never has heard of the device. He told me he was so happy about this because if you do a 24 hour EEG with video it's a shot in the dark. He said often they do not see any activity. This can gather data for a much longer time and is non invasive. He also said it wonderful for the parent and child."
It's messages like these that
bring meaning to all the hard work.